Tips for Meaningful Days

Meaningful activities are those events or tasks that are failure free opportunities for success.  Here are some strategies for creating meaningful days for your loved one who has Alzheimer’s or another related dementia.

• *Look for activities that will be failure free.   A craft project with a pre-set outcome or appearance may be too difficult, whereas arranging silk flowers in a vase is a failure free task.
• *Reduce distractions so the person can focus on the task, eliminating things such as background noise from the television.
• *Keep exercise and physical activity part of everyday, as it helps keep sleep and nighttime habits normal.
• *Familiar activities such as setting the table and folding laundry should be part of the daily routine that the person with Alzheimer’s disease helps with.  The tasks are meaningful, familiar activities and assist to remain skills as long as possible.
• *If music, exercise, or spiritual activities were part of your family member’s routine each week, those type of activities should occur frequently during the week now as well.

For more information contact 317-218-5111.

Father’s Day

Many people become discouraged when it’s time to celebrate a holiday with a family member who has dementia.  Rather than become discouraged, use the following tips to make this Father’s Day a great day to remember.

• Remember that your Dad may become overwhelmed in large crowds and loud noises.  It may be best to have a cookout at home, rather than go to a crowded restaurant.
• Give Dad the opportunity to be successful.  Have him “give advice” on how to flip the hamburgers on the grill.  Perhaps he used to enjoy fishing, plan a small fishing trip at a local stream or pull out the tackle box and “plan the next fishing trip.”
• Give Dad gifts that will remind him of his past.  A scrapbook with pictures of his adventures, family, friends, and work might be the perfect tool to help him start reminiscing and have a conversation.
• During the family get together, be sure that Dad has an opportunity to rest.  If he becomes overwhelmed during the day, encourage him to take a break guide him to a quiet part of the house.
• Make sure everyone understands ahead of time if possible that, if Dad is repeating the same phrases or questions, this is part of the dementia process.  Answer the questions each time as though it is the first time you have responded to Dad.
• Enjoy your DAD!  Remember, if the family is upbeat and enjoying their time together, then your dad will too.

For more information, please contact 317-218-5111 or www.behomelivelife.com

“While I’m visiting my dad, I really struggle to hold a conversation with him. Do you have any advice?”

“While I’m visiting my dad, I really struggle to hold a conversation with him.  Do you have any advice?”

As Alzheimer’s progresses conversations can become more difficult.  As a person with Alzheimer’s begins to notice gaps in his memory, or has trouble understanding questions, he will withdraw from social situations that may become uncomfortable.   As the disease progresses, care givers must learn to rely on non-verbal body language in order to anticipate the needs and wants of their loved ones with dementia.

Try these tips to encourage conversations:

• Pick a topic of interest that you know your dad enjoyed during his 20’s-50’s – for example, fishing.

• Choose materials such as old photos of fish, free fishing guides available at most bait shops and a tackle box. These items can be used for cueing.

• Talk about the items:
  • “Dad, look at this picture of you and me at Pike Lake.  Do you remember what kind of fish you caught that day?” 
  • If your dad isn’t able to recall the answer right away, try saying:  “It looks like a Northern Pike to me.  It has sharp teeth, and I remember how it took both of us to pull the fish up to shore.”
  • Ask:  “What fish was the most fun to catch?  Did you like Largemouth Bass or Bluegill for eating?  What is the best bait to use to catch Catfish?”

• If answering questions is difficult when you first begin the conversation, try going through all of the photos and narrating what happened in each one.

• Once you’ve gone through the photos, try asking the questions again.  If you know the answers to the questions, use a picture to cue your dad to the correct answer.  For example:  “Dad which fish do you think has the best flavor?” (Show a picture of a Bluegill or which ever fish you know he prefers.)

• You may use the tool box in an additional way to guide the conversation.  By touching each of the items in the box, your dad will be using his sense of smell, touch, and vision to cue his memory. 

Remember, the key to unlocking conversation is using tools to cue his memory.  The more you remember about your dad and his past roles and hobbies, the more cueing you can offer him.

Call to Action

CALL TO ACTION

I received this information today in the Alzheimer’s Association’s ENewsletter.  Please join all caregivers to make a difference in the lives of those who are battling this difficult disease.

Advocate Impact: Forum 2009 

Last month, over 600 advocates from around the country marched on Capitol Hill to demand that our lawmakers make Alzheimer’s a national priority.

During meetings with advocates, members of Congress made the following commitments:

       188 indicated support to end the two-year waiting period for Medicare;

       181 indicated support for a $250 million increase in Alzheimer research funding; and

       83 indicated support the creation of an Alzheimer’s Solutions Project Office.

       65 members indicated support for all 3 issues!

You can catch a glimpse of the action at: http://www.alz.org/forum

We have great momentum and now is the time to “seal the deal”. Read on…

What Can I Do Now?

Ask your members to co-sponsor the End the Medicare Two-year Wait Bill!
People under age 65 with dementia who lose their jobs are likely to lose job-related health insurance. Many become uninsured and uninsurable. Just when they need coverage the most, federal law requires them to wait two years to become eligible for Medicare. Because of this wait, families face soaring out-of-pocket costs for health care or completely forego care. 

Email your members of Congress now. Ask them to co-sponsor the Ending the Medicare Disability Waiting Period Act of 2009 (S.700 / H.R.1708).

Go to: http://alz.kintera.org/endthewait 

For more information on how you can make a difference in the lives of those with Alzheimer’s contact us at 317-218-5113 or www.behomelivelife.com.

Daily Routine

Consider how you organize your own day when planning the day for the person with dementia. There are times when you want variety and other times when you welcome routine. The challenge for caregivers is to find activities that provide meaning and purpose, as well as pleasure.

Begin by thinking about last week:

Which activities worked best and which didn’t? Why?
Were there times when there was too much going on or too little to do?

Use what you’ve learned to set up a daily plan. A planned day allows you to spend less time and energy trying to figure out what to do from moment to moment. Allow yourself and the person with dementia some flexibility for spontaneous activities.

Oftentimes, structured and meaningful activities reduce agitation and improve mood. The type of activity and how well it’s completed are not as important as the joy and sense of accomplishment the person gets from doing it. So, remember, it’s not about the end product, it’s about having fun, doing something your parent remembers doing, and giving him/her the feeling of being needed again.

The success of an activity can vary from day to day. In general, if the person seems bored, distracted or irritable, it may be time to introduce another activity or to take time out for a rest.

An example of a daily routine:

Morning

·         Wash, brush teeth, get dressed

·         Prepare and eat breakfast

·         Have coffee and make conversation

·         Discuss the newspaper, try a hobby, reminisce about old photos

·         Take a break, have some quiet time

·         Do some chores together

·         Take a walk, play an active game

Afternoon

·         Prepare and eat lunch, read mail, wash dishes

·         Listen to music, watch TV, do some puzzles together

·         Take a short break or nap

·         Do some gardening, take a walk, sand some wood, play a few holes of golf, or visit a friend

Evening

·         Prepare and eat dinner, clean up kitchen. Be social during this time

·         Reminisce over coffee and dessert

·         Play cards, watch an old movie, visit with family

·         Take a bath, get ready for bed, read a book, or watch an old TV show (I Love Lucy, Bob Newhart, etc.)

For more information call (317) 218-5111 or www.behomelivelife.com

“How do I know when it’s time to look for a nursing home for my mom?”

“How will I know when it’s time to find a nursing home for my mom?”

At the mid-stage of Alzheimer’s disease and related dementias a caregiver often has to manage the challenges of:

·         Difficult behaviors such as agitation and restlessness, or the extreme reaction to an event or situation which the person with dementia doesn’t understand

·         Wandering, and the challenges of keeping someone safe in the home, particularly during the nighttime hours

Care can be a 24 hour a day / 7 day a week task as the person with mid-stage dementia often has day and nighttime routines mixed up. This can create difficulty managing the person safely in the home during the hours a caregiver is sleeping, or may be in another part of the home.

The late stage of Alzheimer’s disease usually requires intensive, around-the-clock assistance. A person in late-stage Alzheimer’s usually:

·         Has difficulty eating and swallowing

·         Needs assistance walking and eventually becomes bedridden or chair-bound

·         Needs full-time help with personal care, including toileting

·         Is vulnerable to infections and pneumonia

·         Loses the ability to communicate with words

At this stage, care requires a fair amount of physical capacity and endurance, as well as additional caregiver support which may strain or exhaust financial resources.

If you are not sure if it’s time to select a nursing home, ask yourself a few questions:

Safety:
Is the person with dementia safe?
Has he/she left the house alone and/or gotten lost?

Health:
Is the health of the person with dementia at risk?
Is my health as a caregiver at risk?
Is he/she incontinent of bowel and/or bladder?

Care needs:
Does the person with dementia need more care than I am able to give right now?
Is it becoming too difficult for me to care for the person with dementia?
Have I exhausted financial resources needed for paid caregiver support in the home?

For more information call 317-215-5111 or www.behomelivelife.com

My dad sleeps all the time. He won’t get involved in any of the activities at the nursing home.

Begin by assessing the current activity calendar with the Activity Director at the nursing home.  Discussing your dad’s interests prior to the onset of dementia with the Activity Director will determine the best schedule of personally meaningful activities for your dad. You may need to adapt an activity to your dad’s level of ability today, but that doesn’t mean he still couldn’t enjoy some of his favorite hobbies. 

Take, for example, fishing.  I use a fishing kit with my grandfather when I visit him in the nursing home.  We straighten the tackle box, practice tying knots, casting the line, and looking at photos of his past fishing trips.  He never actually goes fishing, but he is able to reminisce about the hobby and spend time mentoring me on the best way to catch a bluegill!

For more tips:  check out our website at www.behomelivelife.com or call 317-218-5111

My dad keeps asking the same questions over and over again.

“My dad keeps asking the same questions over and over again.”

Short term memory loss is typical with someone who has Alzheimer’s.  Caregivers may feel themselves becoming very frustrated with repetitive questions and may not know how to help the person with Alzheimer’s.

Tip:

Caregivers should answer the question.  Provide multiple cues to help the person with Alzheimer’s try to remember the answer. 

For example, when asked “When are we going to eat?” try these responses:

Answer #1:  “We will eat at noon.”  Point to a clock and ask if the person if they remember what noon looks like on the clock.  Then say:  “When you smell the bacon cooking you will know that the BLT’s are ready to eat.”

Answer #2:  “Are you hungry now?  We could have a snack.”

Or

Answer #3: “Would you like to help me prepare lunch?”

If this tip isn’t working, try to figure out what need is un-met.  Is the person with Alzheimer’s feeling unsure of himself or the situation?  Is he feeling scared?  Does he need to eat now because he is hungry?  Is he looking for something to do?

Fulfilling an un-met need or using redirection may be an effective tool in reducing repetitive questions and redirecting his thoughts to something different.

For more tips:  check out our website at www.behomelivelife.com or call 317-218-5111

How Do I Get My Mom to Take a Shower?

“How can I get my mom to take a shower?”

Providing personal care is a very demanding job.  Our goal as caregivers should always be do the task “with” the person who has dementia, never to do the task “for” someone with dementia.  Most tasks can be completed successfully; however, many times these tasks will need to be adapted to the person’s abilities. 

Base the bathing task on the routine your mom used prior to the onset of dementia.  Did she take a bath or a shower?  When did she bathe and how often?  Did she wash her hair during her shower?   Once you identify her past routine, you can structure the current routine around her personal preferences.

Remember these tips:

Ensure that the bathroom is comfortable for showering.  Is the temperature comfortable and is the lighting appropriate?

Make sure all necessary items for the shower are waiting in the bathroom.  You don’t want to leave in the middle of the shower to find a towel or soap.

Make the experience a relaxing pleasure, not a demanding chore.

Allow your mom the opportunity to complete as much of her shower herself, as possible.  You may need to stay close by for safety, but remember that dignity is important.

If an argument begins, stop the shower.  Try again later or you may even consider a sink bath. 

Remember, keeping your mom relaxed and feeling safe the important part.  There are many ways to keep a person clean without immersing her completely in the water.

For more tips:  check out our website at www.behomelivelife.com or call 317-218-5111

The Elder Abuse Victims Act

In today’s edition of the McKnight’s Long-Term Care News and Assisted Living Newsletter I read this article on legislation that has been passed protecting our Seniors against abuse. 

“Economic stimulus legislation hasn’t been the only item on Congress’s plate lately. The House of Representatives Wednesday passed a bill that would fund elder abuse prosecution and establish education and therapy programs for victims and their families.

Between 1 million and 2 million seniors in the U.S. have suffered abuse, according to the bill’s sponsor, Rep. Joe Sestak (D-PA). There is currently no Senate companion bill, though Sestak has said the Senate would likely pass a bill soon.”

Call to Action:  Contact your Senator today.   Ask your Senator to pass a similar bill soon to protect those at risk for elder abuse.

            Care giver stress is a leading cause of elder abuse.  A study, published in the British Medical Journal earlier this year, states that fifty percent of family caregivers demonstrate abusive behavior towards the family member with dementia that they are caring for.

You’re not alone.  We’re experts.  Get the right answers and appropriate strategies the first time, and every time.

www.behomelivelife.com                   Phone: 317-218-5111